Co-production: participant and stakeholder involvement in research.

UKRIO resources:

External Resources:

Institutional resources: 

Co-productive CollectiveA co-production community where everyone is welcome. Together we learn, connect, and champion co-production for lasting change (established by UCL). Monthly co-production cuppas:  

Co-productive OracleThe Co-Production Oracle is a deck of cards designed to help you open up new perspectives on issues, problems or areas of stuck-ness in collaborative situations. Produced by Hannah Mumby, working with Exeter University. 

Co-Production Network in Scotland Supporting co-production policy and practice across Scotland. They have a useful resources page 

Examples of Co-production in practice: 

UK Centre for Ecology and Hydrology – the UK Centre for Ecology & Hydrology is an independent, not-for-profit research institute, carrying out excellent environmental science across water, land and air. ‘We believe that the best solutions are co-designed and co-delivered, and our partnerships cross borders, sectors and disciplines. We are a strategic delivery partner for the Natural Environment Research Council, part of UK Research and Innovation.’ 

University of Leeds Horizons Institute a shared interdisciplinary platform for tackling global challenges, with a strong focus on external partnership working and EDI. ‘Our aim is to get researchers from all walks of life talking to each other, and to people with real-world challenges. It is about a two-way flow of ideas and co-designing solutions.’ 

Obesity Voices – Patient and Public Involvement and Engagement hub: membership of over 260 people with a lived experience of obesity across broad and diverse populations. 

Charities working in this space:

Young Foundation are focussed on community research and social innovation and run a peer research network.  


Participatory research is a priority for UKRI and Research England – provided specific funding for the sector from 21/22 – 23/24.  

Signed this concordat:   

NHS/Patient related:

Patient and public involvement in research – PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes | NIHR 

NIHR Centre for Engagement and Dissemination. NIHR Centre for Engagement and Dissemination.  NIHR Guidance on co-producing a research project – Learning For Involvement  

Publications – articles, guides and case studies:

Fogg, E. Lanning, J. Shoebridge, J. Longstaff, R. De Vos, K. Dawson-Taylor, A. Glanville-Hearson, D. Carpenter, S. Court, T. Brown, E. Heiden, A. Chauhan. (2022). The role of Participatory Action Research in developing new models of healthcare: Perspectives from participants and recommendations for ethical review and governance oversight. Ethics, Medicine and Public Health, Volume 24.

Practice Research Advisory Group (PRAG) report: ​ 

Asaaga FA, Young JC, Srinivas PN, Seshadri T, Oommen MA, et al. (2022) Co-production of knowledge as part of a OneHealth approach to better control zoonotic diseases. PLOS Global Public Health 2(3): e0000075.  

Autistics Guide to Adulthood

Ethical Challenges of Co-production Imagine Project 

Peer-Research-by-Children-and-Young-People-and-their-Allies-Rapid-Evidence-Review.pdf ( 


Last revised September 2023. 

Please note that this list of resources is not intended to be exhaustive and should not be seen as a substitute for advice from suitably qualified persons. UKRIO is not responsible for the content of external websites linked to from this page. If you would like to seek advice from UKRIO, information on our role and remit and on how to contact us is available here.

This resource page was collated from the chat stream of the UKRIO webinar on Co-production: participant and stakeholder involvement in research.