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General Data Protection Regulation and Research Integrity
Information Commissioner’s Office
- Information Commissioner’s Office: Guide to the GDPR: https://ico.org.uk/for-organisations/guide-to-data-protection/guide-to-the-general-data-protection-regulation-gdpr/
References
- Cornock M. Maturitas. 2018 May;111:A1-A2. General Data Protection Regulation (GDPR) and implications for research. doi: 10.1016/j.maturitas.2018.01.017 https://www.maturitas.org/article/S0378-5122(18)30036-7/fulltext
- Cornock M. Case Rep Womens Health. 2018 Apr 13;19:e00060. How the writers of case reports need to consider and address consent and the General Data Protection Regulation (GDPR). doi: 10.1016/j.crwh.2018.e00060 https://www.sciencedirect.com/science/article/pii/S2214911218300316?via%3Dihub
Guidelines and Discussion Documents
- JISC: GDPR resources https://www.jisc.ac.uk/gdpr
- Health Research Authority: GDPR guidance https://www.hra.nhs.uk/planning-and-improving-research/policies-standards-legislation/data-protection-and-information-governance/gdpr-guidance/
- Medical Research Council: GDPR resources https://mrc.ukri.org/research/facilities-and-resources-for-researchers/regulatory-support-centre/gdpr-resources/
- Economic & Social Research Council: Why GPDR matters for research https://blog.esrc.ac.uk/2018/05/25/why-gdpr-matters-for-research/
Webinars and Videos
- A 3 minute video from the Luxembourg Agency for Research Integrity specifically aimed to help scientists understand key elements of the GDPR and how it relates to the conduct of scientific research. GDPR Basics for Scientists https://youtu.be/hBzqELMe2nY
Last revised October 2019.
Please note that this list of resources is not intended to be exhaustive and should not be seen as a substitute for advice from suitably qualified persons. UKRIO is not responsible for the content of external websites linked to from this page. If you would like to seek advice from UKRIO, information on our role and remit and on how to contact us is available here.
UKRIO would like to thank our Advisory Board and other volunteers for their help in putting this list together.
